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Assessing the Social Determinants of Health and Adverse Childhood Experiences in Patients Attending a Children's
Ethan Ponton1,2, Rebecca Courtemanche3,4, Tanjot K Singh5
1Office of Pediatric Surgical Evaluation and Innovation, 12358British Columbia Children's Hospital, University of British Columbia, Vancouver, British Columbia, Canada.
Insights
Many families in cleft and craniofacial programs face social and financial challenges impacting health. Integrating social determinants of health (SDoH) discussions into care is feasible and valued by patients.
Area of Science:
- Health Services Research
- Psychosocial Medicine
- Public Health
Background:
- Cleft and craniofacial anomalies present complex patient needs extending beyond medical and surgical interventions.
- Social determinants of health (SDoH) significantly influence health and surgical outcomes in these patient populations.
- Multidisciplinary Cleft Palate-Craniofacial programs require integrated approaches to address non-medical factors.
Purpose of the Study:
- To describe SDoH for patients in a Cleft Palate-Craniofacial program.
- To develop and assess the feasibility of incorporating trauma-informed psychosocial histories into clinic workflows.
- To promote discussions on SDoH and their impact on patient health and surgical outcomes.
Main Methods:
- A single-site, cross-sectional study was conducted.
- Questionnaires were administered to 290 families within a provincial quaternary care Cleft Palate-Craniofacial program.
- Data collection focused on barriers to healthcare access, financial struggles, adverse childhood experiences, social support, and resilience.
Main Results:
- Significant barriers to primary health care access (34%) and financial struggles (51%) were reported.
- 11% of families reported high Adverse Childhood Experiences (ACEs) scores, and 47% lacked adequate social support.
- Families welcomed discussions on SDoH and valued involvement in care decisions.
Conclusions:
- Integrating SDoH assessments into multidisciplinary Cleft Palate-Craniofacial team care is feasible and beneficial.
- Healthcare providers should proactively inquire about SDoH and advocate for social work support.
- Addressing psychosocial factors is critical for optimizing health and surgical outcomes in patients with craniofacial anomalies.
Abstract:
This study aimed to describe the social determinants of health (SDoH) for patients receiving multidisciplinary team care in a Cleft Palate-Craniofacial program, develop responsive and consistent processes to include trauma-informed psychosocial histories, promote discussions about additional "non-medical" factors influencing health and surgical outcomes, and demonstrate that these activities are feasible in the context of multidisciplinary patient-provider interactions.
Abstract:
Single-site, cross-sectional study using a questionnaire.
Abstract:
Participants were recruited from a provincial quaternary care Cleft Palate-Craniofacial program at British Columbia Children's Hospital in Vancouver, BC, Canada.
Abstract:
290 families completed the questionnaire.
Abstract:
34% of families experience significant barriers to accessing primary health care, 51% struggle financially, and 11% scored four or more on the Adverse Childhood Experiences scale. Furthermore, 47% reported not having adequate social support in their lives, and 5% reported not feeling resilient at the time of the survey.
Abstract:
Patients with cleft and craniofacial anomalies have complex needs that extend beyond the surgical and medical care they receive. It is critical that all Cleft and Craniofacial teams incorporate social histories into their clinic workflow and be responsive to these additional needs. Discussions surrounding SDoH and adversity are welcomed by families; being involved in the care and decision-making plans is highly valued. Healthcare providers can and should ask about SDoH and advocate for universal access to responsive, site-based, social work support for their patients.
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