Palliative care for adults with intellectual disability

Area of Science:

• Disability Studies
• Healthcare Access
• Intellectual Disability Research

Background:

• Contemporary disability principles advocate for mainstream service participation over segregated services for adults with intellectual disability.
• Optimal healthcare access for this population necessitates both robust disability supports and adaptable generic health systems.
• Effective care requires collaboration between individuals with lived experience, disability sector professionals, and healthcare providers.

Purpose of the Study:

• To explore the necessary adjustments in mainstream healthcare services for adults with intellectual disability.
• To examine the application of reasonable adjustments to core palliative care principles for adults with intellectual disability.
• To highlight the importance of an integrated approach between disability and health sectors.

Main Methods:

• Case study analysis of an adult with intellectual disability requiring palliative care.
• Examination of reasonable adjustments to mainstream palliative care.
• Qualitative exploration of experiences and needs.

Main Results:

• Successful integration of disability supports and health system adjustments is crucial for person-centered palliative care.
• Specific modifications to mainstream palliative care principles were identified as necessary.
• The case study illustrated practical challenges and solutions in providing equitable care.

Conclusions:

• Mainstream health services require significant, person-centered adjustments to effectively serve adults with intellectual disability.
• Collaboration and understanding between disability and health sectors are vital for improving healthcare outcomes.
• Reasonable adjustments to palliative care are essential for ensuring dignity and quality of life for adults with intellectual disability.