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Disparities in Pediatric Rheumatic Diseases.
Alisha M Akinsete1, Jennifer M P Woo2, Tamar B Rubinstein1
1Division of Pediatric Rheumatology, Department of Pediatrics, Children's Hospital at Montefiore/Albert Einstein College of Medicine, 3415 Bainbridge Avenue, Bronx, NY 10467, USA.
Pediatric rheumatology patients facing social disadvantages experience worse health outcomes due to healthcare barriers. Addressing these disparities is crucial for improving care for all children with rheumatic diseases.
Area of Science:
- Pediatric Rheumatology
- Health Disparities Research
- Health Services Research
Background:
- Health and healthcare disparities are widespread in pediatric rheumatology, affecting marginalized populations based on race/ethnicity, socioeconomic status, and geography.
- These disparities lead to increased disease severity, morbidity, mortality, reduced quality of life, and poor mental health outcomes.
- Structural and institutional barriers, including limited access to quality healthcare, contribute significantly to these disparities.
Purpose of the Study:
- To highlight the prevalence and impact of health and healthcare disparities in pediatric rheumatology.
- To identify gaps in the existing literature regarding disparities in less-studied pediatric rheumatic diseases.
- To emphasize the need for understanding disparity causes to inform policy and interventions.
Main Methods:
- Literature review focusing on health and healthcare disparities in pediatric rheumatology.
- Analysis of existing research to identify populations affected and outcomes.
- Identification of research gaps concerning specific pediatric rheumatic diseases.
Main Results:
- Socially disadvantaged and marginalized groups face significant health and healthcare disparities in pediatric rheumatology.
- Juvenile idiopathic arthritis and childhood-onset systemic lupus erythematosus are the most studied conditions, with limited research on other rheumatic diseases.
- Disparities are linked to factors like race/ethnicity, socioeconomic position, and geographic location.
Conclusions:
- Persistent structural and institutional barriers impede equitable care for children with rheumatic diseases.
- Further research is needed to address disparities across all pediatric rheumatic conditions.
- Understanding the root causes of disparities is essential for developing effective policies and interventions to improve pediatric rheumatology care.
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