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Moving and Handling Children After Death: An Inductive Thematic Analysis of the Factors That Influence Decision
Insights
This study explored how UK hospice practitioners make decisions when moving deceased children
Area of Science:
- Pediatric Palliative Care
- Thanatology
- Healthcare Practice
Background:
- UK children's hospices utilize specialized 'cool rooms' for post-mortem care of young patients.
- Practitioners require support and resources for the sensitive task of moving and handling deceased children's bodies.
Purpose of the Study:
- To identify factors influencing decision-making in moving and handling deceased children's bodies in hospice cool rooms.
- To inform the development of resources supporting hospice practitioners in this specialized care.
Main Methods:
- An internet-based survey was distributed to all practitioners at a single UK children's hospice.
- A high response rate (94.9%, n=56) was achieved.
- Inductive thematic analysis using a 6-phase framework was employed.
Main Results:
- Three core themes emerged: care of the body, stages of care, and method of handling.
- Decision-making complexity and practice variations were identified.
- Practitioners used analytical, initiative, and intuitive (experienced staff) decision-making approaches.
Conclusions:
- Evidence-based policy and training significantly influence practitioners' perceptions and decisions.
- Developing a policy and education framework is recommended to standardize practice and competence in moving and handling deceased children.
Abstract:
Hospices for children and adolescents in the United Kingdom provide care to the bodies of deceased children in specially designed chilled bedrooms called "cool rooms." In an effort to develop resources to support hospice practitioners to provide this specialist area of care, this study aimed to identify the factors that influence decision making when moving and handling children's bodies after death in a hospice cool bedroom. An internet-based survey was sent to all practitioners employed by 1 children's hospice. A total of 94.9% of eligible staff responded (n = 56). An inductive approach to thematic analysis was undertaken, using a 6-phase methodological framework. Three core themes were identified that inform practitioners' perception of the appropriateness of moving and handling decisions: care of the body, stages of care, and method of handling. The complexity of decision making and variation in practice was identified. Practitioners relied on both analytical and initiative decision making, with more experienced practitioners using an intuitive approach. Evidence-based policy and training influence the perception of appropriateness and the decisions and behavior of practitioners. The development of a policy and education framework would support practitioners in caring for children's bodies after death, standardizing expectations and measures of competence in relation to moving and handling tasks.
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