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Parenting a Child with a Neurodevelopmental Disorder

Peter L Rosenbaum1, Monika Novak-Pavlic2

  • 1Faculty of Health Sciences, McMaster University, CanChild Centre for Childhood Disability Research, 1400 Main Street West, Hamilton, ON L8S 1C7 Canada.

Current Developmental Disorders Reports
|November 29, 2021
PubMed

Insights

Childhood disability approaches now center the family, not just the child. Interventions focus on function, family, fun, friendships, fitness, and future, empowering parents in care.

Area of Science:

  • Pediatric Rehabilitation
  • Developmental Pediatrics
  • Family-Centered Care

Background:

  • Historically, childhood disability research focused on the child's impairment and professional-led interventions.
  • Parental perspectives and well-being were often overlooked, with an emphasis on compliance with professional recommendations.

Purpose of the Study:

  • To review the paradigm shift in childhood disability from a child-centric to a family-centric approach.
  • To highlight the influence of frameworks like the International Classification of Functioning, Disability and Health (ICF) and the 'F-words for Child Development' on modern practices.

Main Methods:

  • Literature review and synthesis of conceptual frameworks in childhood disability.
  • Analysis of the evolution of intervention goals and service delivery models.

Main Results:

  • A significant shift towards recognizing the family as the unit of care in childhood disability.
  • Integration of the 'F-words' (function, family, fun, friendships, fitness, future) into intervention goals, emphasizing parental involvement.
  • The International Classification of Functioning, Disability and Health (ICF) framework supports a holistic view of disability.

Conclusions:

  • The 'F-words' concepts have gained global acceptance, positively impacting parents and professionals.
  • These shifts necessitate changes in the structure, processes, and content of services for children with neurodevelopmental disorders and their families.
Abstract

Keywords:
Child and family developmentChildhood disabilityF-words in child developmentFamily wellbeingICF

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