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Ethical advice in paediatric care
Joe Brierley1, Emma Cave2, Dave Archard3,4
1Paediatric Bioethics Centre, University College London, Great Ormond Street Institute of Child Health, NIHR Great Ormond Street Hospital Biomedical Research Centre, London, UK joe.brierley@gosh.nhs.uk.
Insights
Clinical ethics committees (CECs) are crucial for providing ethics advice, especially in pediatrics. This review addresses key questions regarding their role and responsibilities to improve ethics support.
Area of Science:
- Medical Ethics
- Pediatric Bioethics
- Clinical Ethics Services
Background:
- The COVID-19 pandemic highlighted the need for accessible clinical ethics advice.
- Clinical ethics committees (CECs) play a vital role in navigating complex ethical dilemmas.
- Paediatric CECs face unique challenges and require specific considerations.
Purpose of the Study:
- To examine the role, remit, and responsibilities of paediatric clinical ethics committees.
- To address key questions surrounding the function and effectiveness of CECs.
- To propose next steps for enhancing ethics support in paediatric practice and beyond.
Main Methods:
- Review of existing literature and practices concerning paediatric CECs.
- Identification and analysis of 12 core questions related to CECs' operations.
- Formulation of preliminary answers and recommendations based on the review.
Main Results:
- The review identifies critical areas for defining the scope and duties of CECs.
- Preliminary answers are provided for 12 fundamental questions regarding CECs.
- The study acknowledges broader bioethics team functions like education and research support.
Conclusions:
- Further development is needed to optimize the role and responsibilities of paediatric CECs.
- Standardizing the function of CECs can improve clinical ethics support.
- The findings offer a framework for enhancing ethics services in paediatric healthcare and general clinical settings.
Abstract:
The need for local ethics advice during the COVID-19 pandemic has put a spotlight on clinical ethics committees (CECs) and services. In this review, we focus on paediatric CECs that raise both generic questions and specific issues. In doing this, we acknowledge the broader roles of education, research and staff support some bioethics teams have developed but focus on the main areas of clinical ethics support to clinical teams. We raise 12 questions about the role, remit and responsibilities of CECs, provide preliminary answers to these and set out the next steps for the development of ethics support both in paediatric practice and more generally.
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