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A Novel Rescue Technique for Difficult Intubation and Difficult Ventilation

Published on: January 17, 2011

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Siblings of children with a complex chronic disorder treated by non-invasive ventilation

Nicolas Théron1, Sonia Khirani1,2,3, Alessandro Amaddeo1,2

  • 1Pediatric Non-invasive Ventilation and Sleep Unit, Assistance Publique-Hôpitaux de Paris (AP-HP), Hôpital Necker-Enfants Malades, Paris, France.

Journal of Paediatrics and Child Health
|December 17, 2021
PubMed

Insights

Most siblings of children using long-term non-invasive ventilation (NIV) show no significant emotional or behavioral issues. These siblings often feel responsible and involved, underscoring the need to include them in the child

Area of Science:

  • Pediatric Pulmonology
  • Child Psychology
  • Family Medicine

Background:

  • Long-term non-invasive ventilation (NIV) is a critical treatment for children with chronic respiratory conditions.
  • The impact of a child's chronic illness and treatment on their siblings is an important area of study.
  • Understanding the psychosocial well-being of siblings is crucial for comprehensive family-centered care.

Purpose of the Study:

  • To evaluate the emotional and behavioral functioning of siblings of children receiving long-term non-invasive ventilation (NIV).
  • To identify potential challenges and support needs among siblings of pediatric patients on NIV.

Main Methods:

  • Parents of children treated with NIV completed the Child Behaviour Checklist and a qualitative questionnaire for each sibling (aged 1.5-18 years).
  • Data were collected from parents of 49 ventilated children regarding 79 siblings.
  • Statistical analysis was performed on sibling age groups (1.5-5 and 6-18 years).

Main Results:

  • For siblings aged 1.5-5 years, the mean total T score was 57 ± 22, with 31% in the clinical range.
  • For siblings aged 6-18 years, the mean total T score was 49 ± 12, with 10% in the clinical range.
  • A significant proportion of siblings reported feeling responsible (31%), involved (52%), and worried (31%) about their affected sibling, with 19% showing behavioral changes and 26% impacted by the NIV device.

Conclusions:

  • The majority of siblings of children treated with NIV do not exhibit significant emotional and behavioral problems.
  • Siblings demonstrate a strong sense of responsibility and involvement in their affected sibling's illness and treatment.
  • It is important to involve siblings in the care of the child receiving NIV to support their well-being.
Abstract

Keywords:
chronic diseasenon-invasive ventilationquestionnairesiblingsleep-disordered breathing

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