The BCH message banking process™, voice banking, and double-dipping™

Area of Science:

• Augmentative and Alternative Communication (AAC)
• Speech-Language Pathology
• Neurodegenerative Disease Research

Background:

• Neurodegenerative conditions significantly impact communication abilities.
• Maintaining communication is crucial for personhood and quality of life.
• Boston Children's Hospital (BCH) developed Message Banking as an innovative intervention.

Purpose of the Study:

• To outline the Message Banking process as implemented at BCH.
• To introduce the six core principles guiding the BCH Message Banking approach.
• To highlight the extension of Message Banking to personalized synthetic voice development.

Main Methods:

• Description of the Message Banking process, including "Double Dipping" for voice synthesis.
• Evolution of six core principles based on over a decade of clinical experience.
• Structured introduction of concepts and practices for individuals with ALS and their families.

Main Results:

• The Message Banking process empowers individuals with ALS and their families.
• The approach emphasizes ownership and control for participants.
• Partnerships enable the creation of personalized synthetic voices from banked messages.

Conclusions:

• Message Banking is a valuable tool for preserving communication in neurodegenerative diseases.
• The BCH Message Banking process is guided by core principles ensuring empowerment and hope.
• Personalized synthetic voice development enhances the utility of banked messages.