Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA

Mark Rasburn1, Helen Crosbie1, Amanda Tonkinson1

  • 1National Institute for Health and Care Excellence (NICE), Public Involvement Programme, Level 1A, Manchester, United Kingdom.

Insights

The COVID-19 pandemic necessitated rapid innovations in health technology assessment (HTA) patient and public involvement (PPI). Virtual engagement strategies were developed to ensure patient perspectives remained central to HTA processes.

Area of Science:

  • Health Technology Assessment (HTA)
  • Patient and Public Involvement (PPI)
  • Pandemic Response and Public Health Policy

Background:

  • The COVID-19 pandemic and UK lockdown measures disrupted conventional health technology assessment (HTA) processes.
  • NICE's standard HTA methods became infeasible due to public health guidance and legislation.
  • There was a critical need to adapt HTA to maintain patient-centeredness amidst rapid changes.

Purpose of the Study:

  • To describe the patient and public involvement (PPI) support for NICE's transition to virtual HTA meetings.
  • To evaluate the experiences of patients and the public participating in virtual HTA settings.
  • To identify best practices for virtual PPI in expedited and novel HTA processes.

Main Methods:

  • Analysis of author experiences and feedback from patient and public contributors.
  • Qualitative assessment of participation in virtual HTA meetings and engagement.
  • Exploration of themes related to virtual participation: accessibility, inclusivity, transparency, and group dynamics.

Main Results:

  • Four key themes emerged from virtual participation: accessibility, inclusivity, transparency, and intrapersonal relationships/committee dynamics.
  • Patient representatives actively facilitated guidance development for hypothetical technologies in expedited HTA.
  • Successful adaptation of PPI strategies was crucial for maintaining patient focus during the pandemic.

Conclusions:

  • Virtual engagement strategies can effectively support patient and public involvement in HTA.
  • Addressing accessibility, inclusivity, transparency, and dynamics is vital for successful virtual PPI.
  • Innovative PPI approaches are essential for patient-centered HTA, especially in rapid or novel contexts.

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