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Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA
Mark Rasburn1, Helen Crosbie1, Amanda Tonkinson1
1National Institute for Health and Care Excellence (NICE), Public Involvement Programme, Level 1A, Manchester, United Kingdom.
Insights
The COVID-19 pandemic necessitated rapid innovations in health technology assessment (HTA) patient and public involvement (PPI). Virtual engagement strategies were developed to ensure patient perspectives remained central to HTA processes.
Area of Science:
- Health Technology Assessment (HTA)
- Patient and Public Involvement (PPI)
- Pandemic Response and Public Health Policy
Background:
- The COVID-19 pandemic and UK lockdown measures disrupted conventional health technology assessment (HTA) processes.
- NICE's standard HTA methods became infeasible due to public health guidance and legislation.
- There was a critical need to adapt HTA to maintain patient-centeredness amidst rapid changes.
Purpose of the Study:
- To describe the patient and public involvement (PPI) support for NICE's transition to virtual HTA meetings.
- To evaluate the experiences of patients and the public participating in virtual HTA settings.
- To identify best practices for virtual PPI in expedited and novel HTA processes.
Main Methods:
- Analysis of author experiences and feedback from patient and public contributors.
- Qualitative assessment of participation in virtual HTA meetings and engagement.
- Exploration of themes related to virtual participation: accessibility, inclusivity, transparency, and group dynamics.
Main Results:
- Four key themes emerged from virtual participation: accessibility, inclusivity, transparency, and intrapersonal relationships/committee dynamics.
- Patient representatives actively facilitated guidance development for hypothetical technologies in expedited HTA.
- Successful adaptation of PPI strategies was crucial for maintaining patient focus during the pandemic.
Conclusions:
- Virtual engagement strategies can effectively support patient and public involvement in HTA.
- Addressing accessibility, inclusivity, transparency, and dynamics is vital for successful virtual PPI.
- Innovative PPI approaches are essential for patient-centered HTA, especially in rapid or novel contexts.
Abstract:
The COVID-19 pandemic and lockdown measures in the United Kingdom resulted in significant challenges and created opportunities for innovation to keep patients at the heart of HTA. The introduction of the Coronavirus Act 2020 and the associated public health guidance meant that NICE's conventional HTA methods were no longer feasible. NICE introduced rapid, innovative updates to patient and public involvement (PPI), decision-making meetings, and consultations to harness the expertise of patients and the public to ensure guidance addressed the expected concerns and identified barriers which could impact access. This article describes the PPI support for NICE's rapid shift to virtual meetings and virtual engagement. We utilize the authors' experience and patient and public contributor feedback to understand the experience of participating in a virtual setting and identify four themes: accessibility; inclusivity; transparency; and intrapersonal relationships and committee dynamics. The article also considers how patient representatives participated in, and facilitated, the development of guidance for a hypothetical technology to keep patients and the public at the heart of expedited and novel HTA processes to identify and understand the expected patient concerns and potential barriers for when a technology would be introduced.
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