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Area of Science:

  • Sociology
  • End-of-life care studies
  • Psychology

Background:

  • Powerlessness is a common experience for individuals with a terminal diagnosis.
  • Patient empowerment is a significant focus in end-of-life policy.
  • The concept of
  • power to be oneself
  • emerged from the UK-based
  • Ethics of Powerlessness
  • project.

Purpose of the Study:

  • To thematically analyze blogs authored by individuals with a terminal diagnosis.
  • To examine how patients assert the
  • power to be oneself
  • in their online narratives.
  • To understand the role of patient empowerment in identity construction at the end of life.

Main Methods:

  • Thematic analysis of blog posts from three individuals with a terminal diagnosis.
  • Qualitative research methodology applied to personal narratives.

Main Results:

  • Bloggers demonstrated the
  • power to be oneself
  • through asserting agency for self-affirmation and control.
  • Patients claimed
  • moral authority
  • , offering advice on living and dying.
  • Future-oriented discussions and legacy creation were also key expressions of this power.

Conclusions:

  • Personal blogs serve as a platform for expressing and reinforcing self-identity.
  • Patients create a
  • sacred space
  • between life and death for personal growth and public projection.
  • Patient empowerment is vital for identity construction in terminal diagnoses, often overlooked in policy.