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Bereaved Parent Perspectives and Recommendations on Best Practices for Legacy Interventions
Amy Love1, Katherine Greer1, Cameka Woods1
1St. Jude Children's Research Hospital, Memphis, TN , USA.
Journal of Pain and Symptom Management
|February 14, 2022
Summary
Bereaved parents find legacy activities meaningful for coping with child loss. They recommend personalized approaches for offering these interventions to best support grief and emotional expression.
Area of Science:
- Pediatric Palliative Care
- Childhood Cancer Survivorship and Bereavement
- Thanatology and Grief Counseling
Background:
- Pediatric hospitals provide legacy interventions to support families coping with a child's death.
- Parent perceptions of legacy activity value and best practices are not well understood.
Purpose of the Study:
- To understand bereaved parents' views on the value of legacy activities.
- To gather parent recommendations for optimizing legacy interventions offered by child life specialists and music therapists.
Main Methods:
- Qualitative study using semi-structured interviews with 19 bereaved parents of children who died from cancer.
- Inductive content analysis of transcribed interviews to identify themes.
Main Results:
- Parents found legacy items valuable for seeking meaning and purpose.
- Legacy items were used to promote emotional expression and process grief.
- Individualized assessments, communication, timing, and creativity are key to effective legacy interventions.
Conclusions:
- Bereaved parents highlight the meaningfulness of legacy-building and the need for personalized interventions.
- Future research should include perspectives of patients and siblings on legacy activities.
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