Informed Consent and Protection of Personal Data in Genetic Research on COVID-19

Area of Science:

• Biomedical Research
• Genetics
• Bioethics

Background:

• COVID-19 exhibits diverse symptomatology, necessitating genetic studies to understand its phenotypic expression.
• Current understanding of COVID-19 is incomplete, complicating research planning for biological samples.
• Informed consent models for research biobanks present challenges regarding patient-sample relationships.

Purpose of the Study:

• To address the complexities of informed consent in COVID-19 research biobanks.
• To propose an alternative model for biological sample donation in ongoing research.
• To ensure ethical and effective utilization of patient genetic material for COVID-19 research.

Main Methods:

• Exploration of existing informed consent models, from specific to broad authorization (open consent).
• Introduction of the

Main Results:

• The study highlights the inadequacy of traditional consent models for evolving research needs.
• A

Conclusions:

• Open informed consent is essential for comprehensive COVID-19 research.
• The proposed