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Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway
Kayla Elliott1,2, Danya F Vears3,4,5, Valerie Sung1,2,6
1Prevention Innovation Research Group, Murdoch Children's Research Institute, Parkville 3052, Australia.
Journal of Clinical Medicine
|March 10, 2022
Summary
Parents in newborn hearing screening programs reported satisfaction but also unpreparedness for hearing loss diagnoses. Additional psychological support and refined parent-mentor programs are needed to better assist families.
Area of Science:
- Audiology
- Developmental Pediatrics
- Public Health
Background:
- Universal newborn hearing screening (UNHS) programs aim for early detection of congenital hearing loss.
- Support services exist within some UNHS programs, like the Victorian Infant Hearing Screening Program (VIHSP).
- Limited research addresses optimal parental support within established UNHS frameworks.
Purpose of the Study:
- To explore parental support needs during the diagnostic journey from newborn hearing screening to early intervention.
- To identify areas for improvement in parental support within the VIHSP.
Main Methods:
- Retrospective study using semi-structured interviews.
- Participants: 13 parents of 10 children diagnosed with bilateral moderate-profound sensorineural hearing loss.
- Data analysis: Inductive content analysis.
Main Results:
- Parents expressed high satisfaction with overall support received.
- Some parents felt unprepared for a permanent hearing loss diagnosis, especially after being reassured about transient causes.
- Mixed views on parent-mentor support value; some parents desired additional psychological support.
Conclusions:
- Established UNHS programs like VIHSP provide valuable support but can be enhanced.
- Addressing parental preparedness for diagnosis and offering tailored psychological support are key areas for improvement.
- Refining parent-mentor programs may increase their perceived value.
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