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An intervention mapping-based support program that empowers patients with endocrine therapy management.

Susanne Ahlstedt Karlsson1, Ingela Henoch2, Roger Olofsson Bagge3

  • 1Department of Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden; Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, University of Gothenburg, Gothenburg, Sweden.

Evaluation and Program Planning
|March 21, 2022
PubMed
Summary

This study developed a support program to help women with hormone-receptor-positive breast cancer manage side effects from endocrine therapy (ET). The program aims to empower patients and improve healthcare support for better treatment adherence.

Keywords:
Breast cancerEmpowermentEndocrine therapyIntervention mappingPatientSupport program

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Area of Science:

  • Oncology
  • Patient Support Programs
  • Evidence-Based Practice

Background:

  • Endocrine therapy (ET) is crucial for hormone-receptor-positive breast cancer but often causes side effects.
  • Managing these side effects is a significant challenge impacting treatment continuation for patients.
  • A need exists for structured support to address ET-related issues.

Purpose of the Study:

  • To describe the development of a theory-based support program for patients undergoing ET.
  • To empower patients in managing ET-related symptoms and healthcare navigation.
  • To enhance understanding of the healthcare structure surrounding ET.

Main Methods:

  • Utilized Intervention Mapping (IM), a comprehensive, theory-based approach.
  • Employed participatory design with four advisory groups.
  • Included both patients and healthcare professionals in the development process.

Main Results:

  • Developed a theory-based support program using systematic IM stages.
  • Identified three key patient performance objectives: symptom management knowledge, confident communication with healthcare providers, and active self-direction in care.
  • The program aims to empower patients and illuminate the healthcare system.

Conclusions:

  • A systematically developed model for ET support was created.
  • The model integrates patient and healthcare professional perspectives.
  • The program is designed to improve patient outcomes and adherence to endocrine therapy.