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Are Parents Informed Well Enough About Their Child's Long-term Risks Related to Undescended Testis?
Stephan Degener1, Maximilian Dürbeck1, Stephan Roth1
1Center for Clinical and Translational Research, Department of Urology, Helios University Hospital Wuppertal, Faculty of Health, Witten/Herdecke University, Wuppertal, Germany.
Indian Pediatrics
|March 22, 2022
Summary
Parent education on undescended testis (UDT) is lacking. Many parents of children with UDT do not receive adequate information on long-term risks like infertility or malignancy, necessitating further research and improved patient guidance.
Area of Science:
- Pediatric Surgery
- Urology
- Patient Education
Background:
- Timely surgical repair of undescended testis (UDT) is recommended but often not implemented effectively.
- Suboptimal patient and parent education may contribute to poor clinical practice translation.
Purpose of the Study:
- To evaluate the frequency and content of information provided to parents of children undergoing orchidopexy for UDT.
- To identify gaps in parental education regarding the long-term consequences of untreated UDT.
Main Methods:
- A study involving 310 consecutive cases of UDT undergoing orchidopexy.
- Parents were surveyed regarding the details of education received from their attending clinician.
Main Results:
- 18% of parents received no detailed information on long-term consequences of untreated UDT.
- While impaired fertility was often communicated (79%), malignant degeneration, hypogonadism, and testicular atrophy were poorly addressed.
- 49% of parents sought additional information independently.
Conclusions:
- The current provision of information to parents regarding long-term complications of UDT is insufficient.
- There is a critical need to enhance the frequency and detail of patient/parent education for UDT management.
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