Perspectives on paediatric sleep-disordered breathing in the UK: a qualitative study

Area of Science:

• Paediatric Sleep Medicine
• Respiratory Health
• Healthcare Pathways

Background:

• Limited understanding exists regarding current treatment pathways for paediatric sleep-disordered breathing (SDB).
• Parental and child well-being are significantly impacted by SDB, necessitating improved care strategies.
• Existing UK healthcare pathways for SDB require exploration to identify areas for enhancement.

Purpose of the Study:

• To explore current UK treatment pathways for paediatric sleep-disordered breathing.
• To identify key factors contributing to the well-being of children and their parents affected by SDB.
• To inform the development of better diagnostic and management strategies.

Main Methods:

• Qualitative interviews were conducted with 22 parents of children aged 2-9 years with SDB symptoms.
• Interviews included 5 general practitioners and 6 hospital doctors involved in the referral and treatment process.
• Data were audio recorded, transcribed verbatim, anonymised, and thematically analysed.

Main Results:

• General practitioners infrequently identify SDB, while hospital doctors often uncover unsuspected cases.
• Parents express significant anxiety about their child's breathing, but referral and diagnostic routes are complex.
• Adenotonsillectomy is the primary treatment; patient weight is a noted concern for clinicians. Enhanced diagnostic technology is beneficial.

Conclusions:

• Clear guidelines are needed for the management of paediatric sleep-disordered breathing.
• Improved diagnostic pathways and accessible information are crucial for effective SDB care.
• Addressing parental concerns and streamlining referrals can enhance child well-being.