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Self-regulation, also known as self-control, encompasses a range of cognitive and behavioral processes that allow individuals to adjust their internal states and outward actions to align with socially acceptable norms and long-term goals. It plays a fundamental role in adaptive functioning, from resisting impulsive behaviors to persisting through challenging tasks. While its benefits are widely recognized, self-regulation is not limitless. Muraven and Baumeister's theory posits that...
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Building responsive governance for learning networks.

Keith Porcaro1

  • 1Duke Center on Law and Technology Duke University School of Law Durham North Carolina USA.

Learning Health Systems
|April 18, 2022
PubMed
Summary

A governance review of Improve Care Now (ICN) recommended transitioning leadership to its community. This strategic approach aims to foster sustainable growth for this learning health network focused on pediatric inflammatory bowel disease (IBD).

Keywords:
community managementdata collaborationsdata sharinggovernancelearning health networks

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Area of Science:

  • Health Services Research
  • Network Governance
  • Collaborative Healthcare Models

Background:

  • Improve Care Now (ICN) is a learning health network dedicated to enhancing clinical outcomes for adolescents with Crohn's disease and ulcerative colitis (IBD).
  • ICN utilizes an enhanced patient registry and fosters a collaborative community of patients, parents, clinicians, and researchers.

Purpose of the Study:

  • To conduct a strategic governance review of the Improve Care Now (ICN) network.
  • To identify opportunities for improving network structure and decision-making processes.

Main Methods:

  • A comprehensive review of ICN's governing documents was performed.
  • Interviews and facilitated sessions were conducted with ICN stakeholders.
  • A desk review identified applicable governance best practices for learning health networks.

Main Results:

  • Recommendations were made to transition ICN's governance to its community.
  • Strategies were proposed for building pipelines for future network leaders.
  • The review outlined plans for escalating data-sharing decisions and designing safe online community spaces.

Conclusions:

  • Effective governance provides essential structure for the growth of learning health networks.
  • Organizing structures supporting consistent, documented, and inclusive decision-making are crucial for network sustainability.