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Prevalence of Feeding and Swallowing Disorders in Congenital Heart Disease: A Scoping Review
Vivienne Norman1,2, Liesl Zühlke3,4, Katherine Murray1
1Division of Communication Sciences and Disorders, Department of Health and Rehabilitation Sciences, University of Cape Town, Cape Town, South Africa.
Insights
Feeding and swallowing difficulties are common in children with congenital heart disease, affecting over 40%. Early assessment and management are crucial for improving health outcomes and quality of life.
Area of Science:
- Pediatric Cardiology
- Developmental Pediatrics
- Gastroenterology
Background:
- Feeding and swallowing difficulties are frequent comorbidities in pediatric patients with congenital heart disease (CHD).
- These issues negatively impact child health and caregiver quality of life.
- Understanding the prevalence is key for integrated care.
Purpose of the Study:
- To conduct a scoping review summarizing the published literature on the prevalence of feeding and swallowing difficulties in children with CHD.
- To provide an integrated overview of current research findings.
Main Methods:
- A comprehensive search of relevant databases was performed.
- Fifteen peer-reviewed articles published in English within the last 25 years were included.
- Studies encompassed participants from premature infants to 17-year-olds.
Main Results:
- A pooled prevalence of 42.9% for feeding and swallowing difficulties was reported across studies.
- Aspiration was reported in 32.9% of affected children.
- Prevalence varied due to participant age, and differing definitions/assessments of feeding and swallowing issues.
Conclusions:
- Feeding and swallowing difficulties are indeed common in infants and children with congenital heart defects.
- These challenges necessitate inclusion in standard care protocols.
- Routine assessment and management are recommended as part of the standard of care for pediatric CHD patients.
Abstract:
Feeding and swallowing difficulties are commonly reported as comorbidities in infants and children with congenital heart disease. These difficulties have negative health consequences for the child and impact the quality of life of both the child and caregivers. This scoping review presents an integrated summary of the published literature on the prevalence of feeding and swallowing difficulties in congenital heart disease. Fifteen peer-reviewed articles, written in English and published in the last 25 years, were included in the review, following a search of relevant databases. The studies reported on a total of 1,107 participants across the articles ranging in age from premature infants to children aged 17 years. An overall pooled prevalence of 42.9% feeding and swallowing difficulties was reported, with a prevalence of 32.9% reporting aspiration. A wide prevalence range of feeding and swallowing difficulties was reported across the articles and factors that contributed to this included the ages of participants, and the definition and assessment of feeding and swallowing difficulties used in the studies. The review confirms that feeding and swallowing difficulties are common in infants and children with congenital heart defects, and that assessment and management of these difficulties should be considered part of the standard of care.
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