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Ethics Roundtable: How Much is Too Much?
Mariana F Theodoro1,2, Jacinda Hays3, Mara DiBartolomeo2
1Graduate Medical Education, Johns Hopkins All Children's Hospital, St. Petersburg, FL, USA.
Abstract:
How should the medical team approach care for a very preterm infant with a significant painful and life-limiting condition when the parents wish to pursue all life-sustaining therapies? Here, we discuss a case of an infant born at 28 weeks' gestation with a diagnosis of Carmi syndrome (junctional epidermolysis bullosa and pyloric atresia). While the medical team felt that a do-not-resuscitate order and redirection to comfort care were appropriate, the family held on to hope for recovery and wished to continue with full intensive care measures.
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