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Parent and Well-Sibling Communication in Families With a Child Who Has a Life-Limiting Condition: Quantitative Survey
Tiina Jaaniste1,2, Wei Ling Audrey Chin1,2, Sarah Caellainn Tan1,2
1Department of Palliative Care, Sydney Children's Hospital, Australia.
Families with a child with a life-limiting condition (LLC) experience stress. Communication buffers this stress, with parental resilience and sibling age predicting illness talk. Sibling satisfaction was linked to family cohesion.
Area of Science:
- Pediatric Psychology
- Family Studies
- Communication Research
Background:
- Families with a child with a life-limiting condition (LLC) face significant stress.
- Familial communication can mitigate stress for children and siblings.
- Understanding communication dynamics is crucial for supporting well-siblings.
Purpose of the Study:
- To investigate illness-related communication between parents and well-siblings.
- To examine the amount of communication and sibling satisfaction.
- To identify factors influencing communication in families with a child with an LLC.
Main Methods:
- 48 well-siblings (aged 6-21) and their parents participated.
- Validated measures of familial communication and sibling functioning were used.
- Parents reported on illness information shared with well-siblings.
Main Results:
- Many well-siblings rarely initiated conversations about their sibling's illness or death.
- Parental resilience and well-sibling age predicted communication amount.
- Parents communicated more about illness with daughters than sons.
- Well-siblings and parents reported high satisfaction with communication, linked to family cohesion.
Conclusions:
- This study offers insights into parent-well-sibling communication in families with a child with an LLC.
- Parental factors and sibling characteristics influence communication patterns.
- High family cohesion is associated with greater sibling satisfaction with communication.
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