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A Consent Tool for Secondary Use of Biomedical Data.
Simon Adams1, Gausegan Uthayathas1, Murat Sariyar1
1Bern University of Appl. Sciences, Dept. Medical Informatics, Switzerland.
Studies in Health Technology and Informatics
|May 16, 2022
Summary
A new IT tool streamlines patient data consent, benefiting both researchers and patients by reducing paperwork. Despite positive usability feedback, hospital technical infrastructure challenges hinder widespread adoption of digital consent solutions.
Area of Science:
- Health Informatics
- Medical Ethics
- Software Engineering
Background:
- Patient data is crucial for scientific research, necessitating informed consent.
- Existing consent processes can be burdensome, paper-intensive, and researcher-centric.
- Digital solutions are sought to improve efficiency and participant engagement in data consent.
Purpose of the Study:
- To develop and implement a user-friendly IT solution for process-oriented patient data consent.
- To create a consent tool that adds value for all participants and minimizes administrative overhead.
- To evaluate the usability and effectiveness of the developed consent management system.
Main Methods:
- Development of a novel IT solution for managing patient data consent.
- Implementation of the consent tool within a research or healthcare setting.
- Usability testing using the User Experience Questionnaire (UEQ) method.
Main Results:
- The consent tool demonstrated high efficiency and originality, exceeding average UEQ benchmarks.
- Positive user feedback was received regarding the tool's usability and user experience.
- A significant limitation identified was the lack of compatibility with existing hospital IT infrastructure.
Conclusions:
- The developed IT solution effectively supports the patient data consent process with positive usability.
- Digital consent tools offer benefits for researchers and patients, reducing paperwork and enhancing engagement.
- Technical infrastructure compatibility remains a critical barrier to the widespread implementation of digital health solutions.
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