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Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers

Jori F Bogetz1, Emily Johnston2, Prasanna Ananth3

  • 1Division of Bioethics and Palliative Care (J.F.B.), Department of Pediatrics, University of Washington School of Medicine; Center for Clinical and Translational Research, Seattle Children's Research Institute, Seattle, Washington, USA.

Journal of Pain and Symptom Management
|May 16, 2022
PubMed

Insights

Pediatric palliative care (PPC) clinicians engage in quality improvement (QI) despite challenges. Lack of time, training, and standardized tools hinder QI efforts, impacting care for seriously ill children.

Area of Science:

  • Pediatric Palliative Care
  • Quality Improvement Science

Background:

  • High-quality pediatric palliative care (PPC) is essential for children with serious illnesses.
  • Understanding quality improvement (QI) activities within PPC is crucial for enhancing care delivery.

Purpose of the Study:

  • To describe the background, education, training, and QI activities of PPC clinicians.
  • To identify perceived barriers to QI efforts among national PPC clinicians and programs.

Main Methods:

  • An electronic survey was distributed to national PPC networks and task forces.
  • Survey data on clinician background, QI training, activities, and barriers were collected and descriptively summarized.

Main Results:

  • Most respondents were physicians, with varying levels of QI training (26% had <10 hours).
  • Despite limited dedicated QI staff (37%), 66% participated in QI work.
  • Key barriers included lack of personnel/time, standardized measures, training, and funding.

Conclusions:

  • Over half of PPC participants are involved in QI activities.
  • Significant challenges exist due to limited resources, training, and standardized measures.
  • Addressing these barriers is vital for advancing PPC quality.
Abstract

Keywords:
Pediatricpalliative carequality improvement

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