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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Art Gallery Advocacy: Raising Awareness About the Full Lives of Children with Medical Complexity
Emma Meissner1, McKenzie Johnson2, Sarah Keogh3
1University of Washington School of Medicine, Seattle, Washington, USA.
Introduction:
Children with medical complexity (CMC) are often underrepresented in society.
Objective:
To describe the creation and evaluation of a rotating art gallery exhibit featuring CMC.
Methods:
In partnership with their existing community advisory board, a team of photo-narrative researchers who use participant-generated photographs and personal narratives to explore lived experiences, developed a gallery exhibit featuring CMC with three framed photos, alongside a narrative about each child. The gallery was displayed online and in-person. Visitor demographics and experiences were collected via paper/electronic surveys.
Results:
N = 30 visitors completed surveys. Most attended to support a child/family featured (n = 15, 50%). Despite 40% (n = 12) of visitors reporting their knowledge about CMC was "extremely high" before the exhibit, 40% (n = 12) felt that they "gained some new knowledge" and an additional 33% (n = 10) felt they "learned a great deal."
Conclusion:
Art gallery exhibits may be a helpful way to highlight the full lives of CMC.
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