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[Children's rights in Austrian hospitals: implementation factors for children's participation]
Lisa Gugglberger1, Edith Flaschberger1, Alexander Degelsegger-Márquez1
1Gesundheit Österreich GmbH, Stubenring 6, 1010 Wien, Österreich.
Insights
Children's rights and participation in Austrian hospitals are recognized but inconsistently implemented. Enhancing legal frameworks, staff training, and communication quality is crucial for child-centered care.
Area of Science:
- Pediatric healthcare policy and practice
- Patient rights and advocacy
- Hospital administration and quality improvement
Context:
- Child and adolescent participation in healthcare decisions is increasingly recognized as essential.
- Implementation of children's rights and participation charters (e.g., EACH Charter) in hospital routines remains a challenge globally.
- No prior studies have investigated the implementation of children's rights in Austrian hospitals.
Purpose:
- To assess the awareness and implementation of children's rights, specifically the right to participation, in Austrian hospitals.
- To identify factors that facilitate or hinder the implementation of these rights.
- To provide recommendations for improving child-centered care in Austrian healthcare settings.
Summary:
- A mixed-methods study involving questionnaires with 133 medical and nursing staff and interviews with 15 experts, parents, and an adolescent.
- Findings indicate that while staff acknowledge the importance of child-centered care and participation, implementation varies significantly across hospitals.
- Key areas for improvement include legal and training-based anchoring of children's rights, fostering a supportive team culture, and enhancing the quality of health information and communication.
Impact:
- Provides critical data on the current state of children's rights implementation in Austrian hospitals.
- Offers actionable recommendations to enhance patient-centered care, improve communication, and strengthen staff training.
- Contributes to the broader discourse on pediatric patient rights and effective healthcare delivery for young individuals.
Background:
Various studies show that it is important for children and adolescents (as well as their parents) to be involved and have a say in decisions regarding treatment. Nevertheless, it seems that participation processes are not necessarily implemented into hospital routines everywhere. So far, no study has been conducted on the implementation of children's rights or participation in Austrian hospitals.
Objective:
Our study aimed at investigating the extent to which children's rights (especially the right to participation) and the European Association of Children in Hospital (EACH) Charter are known in Austrian hospitals, how they are implemented, and which facilitating and hindering factors can be identified.
Methods:
A questionnaire survey was conducted among the chief medical and nursing staff on wards where children and adolescents are treated (n = 133), and qualitative interviews were conducted with experts on children's rights, medical and nursing staff, parents and one adolescent girl (n = 15). The results and recommendations for action that were derived from the data were discussed and validated in an expert workshop.
Results:
The medical and nursing staff in Austrian children's and adolescents' wards are already doing a lot to implement and uphold children's rights. There is awareness of the need for child-centered treatment and the need to allow children and adolescents to participate during their hospital stay. Nevertheless, the interviews with parents show that there are large differences between hospitals and that there is still a lot to be done.
Conclusion:
Based on the results, three areas for recommendations for action were identified: 1) anchoring children's rights, both legally and in the training of medical and nursing staff, 2) strengthening the team and feedback culture, e.g., through more staff resources for good teamwork and 3) good health information and good conversation quality. This means that health information for children and adolescents should be quality assured, comprehensible, evidence-based and on aspects relevant to them. Conversations between health professionals and patients and their relatives, should be patient-centered, which can be promoted through training, introduction of quality standards and guidelines.
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