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Updated: Sep 22, 2025

Author Spotlight: Implementation of BIVA for Analyzing Disease Risk Factors in Patients with Low Body Cell Mass

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Developing A Minimum Data Set for A Rheumatoid Arthritis Registry in Iran.

Mostafa Langarizadeh¹, Nahid Mehrabi², Tania Azadi³

¹Department of Health Information Management, Iran University Of Medical Sciences, Tehran, Iran.

Mediterranean Journal of Rheumatology

|May 25, 2022

Summary

A Minimum Data Set (MDS) was developed for a rheumatoid arthritis patient registry in Iran. This standardized tool includes 22 essential data elements for effective health care information management.

Keywords:

Iran healthcare information system minimum data set registry rheumatoid arthritis

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Area of Science:

Health Informatics
Rheumatology
Data Management

Background:

Minimum Data Set (MDS) is foundational for health care information systems.
It standardizes data elements for patient care management.

Purpose of the Study:

To develop a Minimum Data Set (MDS) for a rheumatoid arthritis patient registry in Iran.
To establish a standardized platform for collecting and managing rheumatoid arthritis patient data.

Main Methods:

A two-stage approach was employed in 2018.
Stage one involved qualitative semi-structured interviews and content analysis to identify data elements.
Stage two utilized the Delphi method with 15 rheumatologists for validation, with data analyzed using SPSS.

Main Results:

A final MDS comprising 22 data elements was established.
These elements are categorized into management data (demographics, admission/discharge) and clinical data (examination, treatment, medication).

Conclusions:

The developed MDS serves as a crucial platform for establishing a rheumatoid arthritis registry in Iran.
This standardized data collection tool is recommended by rheumatologists for improved health care data management.