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Development of a Web-Based Decision Aid and Planning Tool for Family Building After Cancer (Roadmap to Parenthood):
Catherine Benedict1,2, Katherine L Dauber-Decker3, Jennifer S Ford4
1Stanford University School of Medicine, Stanford, CA, United States.
JMIR Cancer
|May 31, 2022
Summary
This study improved a web-based family-building decision aid for young adult female cancer survivors. Usability testing showed significant improvements, enhancing confidence in managing fertility and family planning after cancer treatment.
Area of Science:
- Oncology
- Reproductive Medicine
- Health Informatics
Background:
- Young adult female cancer survivors face fertility and family-building uncertainties post-treatment.
- Gonadotoxic cancer therapies can impact reproductive potential.
- A web-based decision aid, Roadmap to Parenthood, aims to support family building after cancer.
Purpose of the Study:
- To evaluate the usability of the Roadmap to Parenthood website.
- To inform design modifications for an improved user experience.
- To support patient-centered development of digital health tools.
Main Methods:
- Two rounds of usability testing with young adult female cancer survivors (N=10).
- Think-aloud exercises and researcher-guided feedback sessions.
- Quantitative (System Usability Scale, WebQual, eHealth Impact Questionnaire) and qualitative (exit interviews) data collection.
Main Results:
- System Usability Scale scores improved from "acceptable" (68) to "excellent" (89.4) after design changes.
- WebQual scores increased from 5.6 to 6.25, indicating enhanced usability.
- Participants reported increased confidence in discussing fertility and family-building, with positive feedback on content and navigation.
Conclusions:
- Website usability significantly improved following user-centered design modifications.
- The decision aid is perceived as useful for family-building decisions post-cancer.
- Future iterations will address emotional impact and further optimize user support and navigation.
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