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Pull Up a Seat: Engaging Patients as Empowered Partners in Health Equity Transformation
Maimah Karmo1, Amy Pierre2,3
1Tigerlily Foundation, Stone Ridge, Virginia.
Maimah Karmo shares her breast cancer journey and founding of the Tigerlily Foundation to support young women of color. The discussion highlights the role of advanced practitioners in equitable, patient-centered breast cancer care.
Area of Science:
- Oncology
- Public Health
- Health Equity
Background:
- Breast cancer disproportionately affects women of color.
- The Tigerlily Foundation was established to address unique challenges faced by young women of color with breast cancer.
- Patient-centered and equitable care are critical in oncology.
Purpose of the Study:
- To share a personal breast cancer experience and the motivation behind founding a support organization.
- To discuss the role of advanced practitioners in improving care for young women of color with breast cancer.
- To highlight the importance of advocacy and empowerment in breast cancer survivorship.
Main Methods:
- Keynote interview at JADPRO Live Virtual 2021.
- Discussion format featuring a breast cancer survivor and CEO/Founder of a non-profit organization.
- Exploration of personal experience and organizational mission.
Main Results:
- Personal narrative of breast cancer survivorship.
- Founding of the Tigerlily Foundation to provide education, advocacy, and empowerment.
- Emphasis on the critical role of advanced practitioners in delivering equitable, patient-centered care.
Conclusions:
- Personal experiences can drive impactful advocacy and support.
- Organizations like the Tigerlily Foundation are vital for addressing disparities in breast cancer care for young women of color.
- Advanced practitioners are essential in advancing equitable and patient-centered oncology care.
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