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Recognizing patient partner contributions to health research: a mixed methods research protocol
Grace Fox1, Dean A Fergusson2,3, Stuart G Nicholls4,5
1School of Epidemiology and Public Health, University of Ottawa, Ottawa, ON, Canada.
Research Involvement and Engagement
|June 6, 2022
Summary
This research examines financial compensation for patient partners in health research. Findings will inform strategies to ensure fair compensation and promote diverse perspectives in studies.
Area of Science:
- Health Services Research
- Patient Engagement
- Research Ethics
Background:
- Financial compensation for patient partners in health research is inconsistently reported.
- Understanding current practices and attitudes towards compensation is crucial for equitable research.
- Existing guidance on patient partner financial compensation needs comprehensive review.
Purpose of the Study:
- To assess the prevalence of reporting patient partner financial compensation.
- To understand researcher and institutional attitudes towards patient partner financial compensation.
- To identify current practices and existing guidance for patient partner financial compensation.
Main Methods:
- Systematic review of published studies to determine compensation reporting prevalence and practices.
- Cross-sectional surveys of researchers and institutions to gauge attitudes towards compensation.
- Scoping review of policy documents and grey literature to map existing guidance.
Main Results:
- Prevalence of reported financial compensation for patient partners will be quantified.
- Researcher and institutional attitudes regarding compensation will be analyzed.
- A comprehensive overview of existing guidance on financial compensation will be presented.
Conclusions:
- Findings will inform compensation strategies for patient partners and researchers.
- This research supports the inclusion of diverse perspectives by addressing compensation.
- Dissemination will occur through traditional and social media, including visual abstracts.
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