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Development and Evaluation of the Pediatric Diabetes Routine Questionnaire for Parents of Young Children with Type 1

Chelsea P Wilcocks1, Paul Enlow2,3, Rachel Wasserman4,5

  • 1Division of Behavioral Health, Nemours Children's Hospital Delaware, Wilmington, DE, USA.

Journal of Clinical Psychology in Medical Settings
|June 18, 2022
PubMed

Insights

The Pediatric Diabetes Routines Questionnaire for Parents of Young Children (PDRQ-PYC) effectively measures diabetes management routines in young children with type 1 diabetes. Consistent routines are linked to better engagement in diabetes tasks for these children.

Area of Science:

  • Pediatric endocrinology
  • Psychometrics
  • Behavioral science

Background:

  • Type 1 diabetes (T1D) management in young children requires consistent daily routines.
  • Existing tools may not adequately capture the nuances of T1D routines in children under six.
  • Developing a reliable measure is crucial for understanding and improving T1D care in this age group.

Purpose of the Study:

  • To develop and psychometrically evaluate the Pediatric Diabetes Routines Questionnaire for Parents of Young Children (PDRQ-PYC).
  • To assess the reliability and validity of the PDRQ-PYC for measuring diabetes-specific routines in families with young children (under 6 years) with T1D.
  • To examine the association between diabetes routines and T1D treatment engagement.

Main Methods:

  • Adaptation of existing PDRQ versions for school-aged and adolescent populations.
  • Recruitment of 173 parents of young children with T1D (YC-T1D).
  • Administration of the PDRQ-PYC alongside measures of diabetes adjustment, self-efficacy, depression, child behavior, spousal support, and T1D treatment engagement.
  • Exploratory factor analysis to determine the questionnaire's factor structure.

Main Results:

  • Exploratory factor analysis supported a unidimensional, one-factor model for the PDRQ-PYC.
  • The PDRQ-PYC demonstrated good internal consistency, convergent validity, and criterion validity.
  • Findings indicated that consistent diabetes routines are associated with greater engagement in T1D management tasks.

Conclusions:

  • The PDRQ-PYC is a valuable and feasible tool for assessing the regularity of T1D management tasks in families with YC-T1D.
  • The PDRQ-PYC, alongside existing versions, enables routine assessment across childhood and adolescence.
  • Establishing consistent routines is important for enhancing T1D treatment engagement in young children.

Keywords:
PsychometricsQuestionnaireRoutinesType 1 diabetesYoung children

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