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The reliability and validity of the perceive, recall, plan and perform assessment in children with a mitochondrial
Marieke Lindenschot1,2,3,4, Saskia Koene5,6, Melissa T Nott7
1Department of IQ Healthcare, Radboud Institute for Health Sciences, Nijmegen, The Netherlands.
Insights
The Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) is reliable and valid for children with mitochondrial disorders using parent-provided videos. This assessment tool demonstrates sufficient psychometric properties for this complex group.
Area of Science:
- Occupational therapy
- Pediatric rehabilitation
- Psychometrics
Background:
- Mitochondrial disorders present complex challenges in assessing functional abilities in children.
- Parent-provided videos offer a potentially valuable, ecologically valid method for evaluating task performance.
- The Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) requires validation for use in pediatric populations with complex conditions.
Purpose of the Study:
- To determine the reliability and validity of the PRPP-Assessment when applied to parent-provided videos of children with mitochondrial disorders.
- To evaluate the psychometric properties of the PRPP-Assessment in a heterogeneous group of pediatric patients.
Main Methods:
- 13 children with mitochondrial disorders participated, with 65 activities video-recorded.
- 11 raters scored activities using the PRPP-Assessment.
- Internal consistency (Cronbach's alpha), intra-rater (Bland-Altman), and inter-rater (ICC) reliability were calculated.
- Construct validity was assessed against the Canadian Occupational Performance Measure (Cohen's Kappa) and via Rasch analysis.
Main Results:
- High internal consistency (0.92) and sufficient to good intra-rater reliability (92-96%) were found.
- Acceptable inter-rater reliability (ICC=0.646) was observed for Stage 1.
- Four out of six validity hypotheses were supported, with Rasch analysis confirming sound psychometric properties.
- Stage 2 showed low ICCs due to limited sample variability.
Conclusions:
- The PRPP-Assessment, using parent-provided videos, demonstrates sufficient to good psychometric properties for children with mitochondrial disorders.
- The assessment is suitable for this population, capturing familiar and meaningful tasks.
- Recommendations include careful task selection and criterion formulation for optimal application.
Purpose:
To investigate the reliability and validity of the Perceive, Recall, Plan and Perform System of Task Analysis (PRPP-Assessment) by parent-provided videos of children with mitochondrial disorders.
Methods:
Videos of 13 children performing 3-7 activities each were the subject of study, resulting in 65 activities. These were scored using the PRPP-Assessment by 11 raters. Internal consistency was calculated with Cronbach's alpha. Intra-rater reliability was evaluated by Bland-Altman Plots on 44 PRPP-Assessment scores. Inter-rater reliability was calculated with ICCAgreement on 128 PRPP-Assessment scores. Construct validity was assessed by comparing the PRPP-Assessment scores to the Canadian Occupational Performance Measure using Cohen's Kappa. PRPP-Assessments scores were evaluated with a multi-faceted Rasch Analysis.
Results:
Internal consistency was high (0.92). Intra-rater reliability was sufficient to be good (92-96% within the 95%-Limits of the Agreement). The ICCAgreement for stage 1 Mastery Score showed acceptable inter-rater reliability (0.646). Stage 2 of the PRPP-Assessment showed low ICCs due to a lack of variability within the sample. Four out of six hypotheses on validity were accepted. Rasch's analysis demonstrated sound goodness-of-fit, and supported the validity of the PRPP-Assessment.
Conclusion:
The PRPP-Assessment by parent-provided videos in this heterogenic group showed sufficient to good psychometric properties. In practice, careful task selection and formulating criterion is recommended.Implications for RehabilitationPRPP-Assessment by parent-provided videos is reliable and valid in the complex, heterogenous group of children with mitochondrial disordersThe PRPP-Assessment is suitable for children with mitochondrial disorders as it showed to contain familiar, functional and meaningful tasks and activities that fit with their level of functioningProfessionals should be aware that parents might not be used to the criterium-based frame of reference of the PRPP-AssessmentWhen applying the PRPP-Assessment, it is recommended to be careful in task selection and formulating the criterion.
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