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Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit
Siti Nur Hanim Buang1, Sin Wee Loh2, Yee Hui Mok2
1Pediatric Palliative Care Service, Department of Pediatric Subspecialities, KK Women's and Children's Hospital, Singapore, Singapore.
Insights
Palliative care (PC) integrated early into pediatric critical care (CC) improves quality of life for critically ill children and their families. This approach enhances communication, decision-making, and provides crucial support throughout illness and bereavement.
Area of Science:
- Pediatric Critical Care Medicine
- Palliative Care Integration
- Family-Centered Outcomes
Background:
- Palliative care (PC) is essential for pediatric patients with life-threatening illnesses.
- PC improves quality of life by managing symptoms and supporting families.
- Early integration of PC alongside curative therapies is most effective.
Purpose of the Study:
- To review evidence on integrating PC into pediatric critical care (CC).
- To assess the impact of PC on patient and family outcomes.
- To provide a framework for PC integration in pediatric intensive care units (PICUs).
Main Methods:
- Narrative review of current evidence.
- Analysis of PC's impact on communication, advanced care planning, and end-of-life care.
- Summary of PC's role in symptom management and bereavement support.
Main Results:
- Early PC integration alongside CC improves patient and family outcomes.
- Effective communication and advanced care planning are key benefits.
- Multidisciplinary support addresses psychosocial, emotional, spiritual, and cultural needs.
Conclusions:
- Integrating palliative care into pediatric critical care enhances the quality of care.
- PC ensures continuity of care and provides vital bereavement support.
- A framework for PC integration in PICUs can optimize care delivery.
Abstract:
Palliative care (PC) is an integral component of optimal critical care (CC) practice for pediatric patients facing life-threatening illness. PC acts as an additional resource for patients and families as they navigate through critical illness. Although PC encompasses end of life care, it is most effective when integrated early alongside disease-directed and curative therapies. PC primarily focuses on improving quality of life for patients and families by anticipating, preventing and treating suffering throughout the continuum of illness. This includes addressing symptom distress and facilitating communication. Effective communication is vital to elicit value-based goals of care, and to guide parents through patient-focused and potentially difficult decision-making process which includes advanced care planning. A multidisciplinary approach is most favorable when providing support to both patient and family, whether it is from the psychosocial, practical, emotional, spiritual or cultural aspects. PC also ensures coordination and continuity of care across different care settings. Support for family carries on after death with grief and bereavement support. This narrative review aims to appraise the current evidence of integration of PC into pediatric CC and its impact on patient- and family-centered outcomes. We will also summarize the impact of integration of good PC into pediatric CC, including effective communication with families, advanced care planning, withholding or withdrawal of life sustaining measures and bereavement support. Finally, we will provide a framework on how best to integrate PC in PICU. These findings will provide insights on how PC can improve the quality of care of a critically ill child.
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