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MACRA Palliative Care Quality Measure Development-Testing Summary Report: Measure Name: Receiving Desired Help for
Rand Health Quarterly
|July 15, 2022
Summary
High-quality ambulatory palliative care is crucial. A new patient-reported measure, "Receiving Desired Help for Pain," is reliable and valid for assessing pain management in palliative care settings.
Area of Science:
- Health Services Research
- Palliative Care Quality Measurement
Background:
- Palliative care has significantly expanded, particularly in outpatient settings.
- There is a recognized need for systematic measurement and incentivization of high-quality palliative care.
- Patient-reported measures are essential for evaluating care experiences.
Purpose of the Study:
- To develop and validate patient-reported outcome measures (PROMs) for ambulatory palliative care.
- To assess the reliability and validity of the "Receiving Desired Help for Pain" measure.
- To inform quality improvement and payment programs in palliative care.
Main Methods:
- Collaborative development of patient-reported data elements.
- National beta field testing of a survey instrument with 44 palliative care programs.
- Rigorous analysis of measure reliability, validity, and performance specifications.
Main Results:
- The "Receiving Desired Help for Pain" measure was demonstrated to be reliable and valid.
- The measure is suitable for use in quality improvement initiatives.
- Provider, program, and diverse patient perspectives were incorporated.
Conclusions:
- The "Receiving Desired Help for Pain" measure is ready for implementation in quality payment programs.
- Validated patient-reported measures are key to advancing ambulatory palliative care quality.
- This work supports data-driven improvements in palliative care delivery.
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