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MACRA Palliative Care Quality Measure Development-Testing Summary Report: Measure Name: Feeling Heard and Understood
Rand Health Quarterly
|July 15, 2022
Summary
High-quality ambulatory palliative care is now measurable. The Feeling Heard and Understood patient-reported measure is validated for use in quality improvement and payment programs.
Area of Science:
- Health Services Research
- Palliative Care Medicine
- Patient-Reported Outcomes
Background:
- Palliative care has significantly expanded, particularly in outpatient settings.
- There is a growing need to systematically measure and incentivize high-quality palliative care.
- Patient-reported measures are crucial for assessing ambulatory palliative care experiences.
Purpose of the Study:
- To develop and test patient-reported measures for ambulatory palliative care experience.
- To validate the 'Feeling Heard and Understood' measure for quality improvement.
- To assess the reliability and validity of patient-reported data elements.
Main Methods:
- A three-year project involving measure development, testing, and validation.
- National beta field testing with 44 ambulatory palliative care programs.
- Analysis of measure reliability, validity, and performance specifications.
- Elicitation of provider, program, and diverse patient perspectives.
Main Results:
- The 'Feeling Heard and Understood' measure was demonstrated to be reliable and valid.
- The measure is ready for implementation in quality improvement initiatives.
- Data elements and survey instruments were developed and tested.
Conclusions:
- The 'Feeling Heard and Understood' measure is a robust tool for assessing ambulatory palliative care.
- This validated measure can support quality payment programs.
- Incorporating patient perspectives, including those from minority groups, is essential for accurate measurement.
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