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Formal and Informal Supports for Women With Intellectual and Developmental Disabilities During Pregnancy

Eliana Rosenthal1, Susan L Parish2, Cristina Ransom3

  • 1Eliana Rosenthal, Lehigh University.

Intellectual and Developmental Disabilities
|July 22, 2022
PubMed

This article explores the role of formal and informal supports for women with intellectual and developmental disabilities (IDD) throughout their pregnancy, childbirth, and postpartum experiences. Data from qualitative interviews with women with IDD (n = 16) were analyzed. Results showed that formal supports aided in planning, transportation, advocacy, and providing emotional support throughout pregnancy. Informal supports helped with errands, comfort, and emotional encouragement. The community surrounding these women facilitated communication with providers, self-empowerment regarding health choices, and increased preparedness for parenthood. Findings indicate the importance of encouraging and sustaining both formal and informal supports during pregnancy, childbirth, and postpartum to improve pregnancy and parenting experiences for women with IDD.

Keywords:
formal supportsinformal supportsintellectual and developmental disabilitiespregnancy

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