Related Experiment Video
Updated: Sep 3, 2025
Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Parents' Needs and Their Perceived Obstacles With Team Members in Perinatal Palliative Care: A Qualitative
Insights
Parents of babies with fetal anomalies experience unmet physical, psychological, social, and spiritual needs. Healthcare teams require structured programs and training for holistic care delivery.
Area of Science:
- Perinatal medicine
- Maternal-fetal health
- Healthcare ethics
Background:
- Prenatal diagnosis advancements highlight critical medical, psychological, and ethical considerations for fetal anomalies.
- Understanding parental needs and interdisciplinary team support is vital for comprehensive care.
Purpose of the Study:
- To identify the needs of parents experiencing fetal anomaly diagnoses.
- To explore parental perspectives on interdisciplinary team support services.
Main Methods:
- Qualitative study employing face-to-face interviews with 30 parents and 40 healthcare team members.
- Phenomenological interpretation used for data analysis.
Main Results:
- Parents reported unmet physical, psychological, social, and spiritual needs throughout pregnancy, childbirth, and postpartum.
- Healthcare team members indicated a need for structured programs, legal frameworks, and enhanced training to provide holistic care.
Conclusions:
- Current support systems inadequately address the multifaceted needs of parents facing fetal anomaly diagnoses.
- Development of structured training and clear legal guidelines is essential for interdisciplinary teams to deliver effective, holistic care.
Abstract:
Advances in prenatal diagnosis have made medical, psychological, and ethical issues regarding the diagnosis of fetal anomalies a crucial topic of research. This study identified the needs of parents of unborn babies with fetal anomalies and their views regarding the services of interdisciplinary team members in charge of assisting them. The sample consisted of 30 parents and 40 team members from a women's health education and research hospital. Data were collected through face-to-face interviews and were qualitatively analyzed using the phenomenological method of interpretation. The results showed that parents' physical, psychological, social, and spiritual needs during pregnancy, childbirth, and postpartum were not fully met after their unborn babies were diagnosed with fetal anomalies. The results also showed that team members needed a structured program, legal regulations, and training to provide holistic care.
More Related Videos
05:04A Common Marmoset Model of Mother-Infant Intervention for Breastfeeding Disorders in the Presence of Paternal Inhibition and Maternal Neglect
Published on: September 22, 2023
14:43A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
Published on: January 12, 2018
Related Concept Videos
01:25Continuing Care
01:27Ethical Issues
Ethical Concerns in Healthcare:
01:17Ethical Dilemmas I
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
01:21Barriers to Effective Communication II
Cultural barriers:
Differences in values, beliefs, religion, knowledge, and tradition can significantly impact communication. Awareness of nonverbal cues is critical, especially when conversing with a patient from a different culture. What appears appropriate in one culture may be inappropriate in another.
Semantic barriers:
As a result of their tendency to use...
01:27Nursing Ethical Principles II
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's...
01:27Parentral Nutrition: Centeral and Peripheral Parental Nutrition
PN can be administered through two primary routes:
1. Central Parenteral Nutrition (CPN):
CPN involves delivering a high concentration of nutrients through a large vein. This is typically achieved using a Peripherally Inserted Central Catheter (PICC) or,...