A consensus statement on health-care transition for childhood-onset inflammatory bowel disease patients
Hideki Kumagai1, Toshiaki Shimizu2, Itaru Iwama3
1Department of Pediatrics, Jichi Medical University, Shimotsuke, Tochigi, Japan.
Insights
Childhood-onset inflammatory bowel disease (IBD) requires planned healthcare transition. Consensus statements were developed to improve care coordination between pediatric and adult gastroenterologists for these patients.
Area of Science:
- Gastroenterology
- Pediatric Medicine
- Health Services Research
Background:
- Inflammatory bowel disease (IBD) is a chronic intestinal inflammatory disorder with increasing global incidence.
- A significant portion of IBD cases are diagnosed in childhood (before 18 years), necessitating lifelong management.
- Existing knowledge and perception gaps exist between Japanese pediatric and adult gastroenterologists regarding healthcare transition for childhood-onset IBD.
Purpose of the Study:
- To address the challenges in healthcare transition for patients with childhood-onset IBD in Japan.
- To develop consensus statements for improving the transfer process from pediatric to adult care.
- To establish guidelines for effective transitional care programs for IBD patients.
Main Methods:
- A panel of experienced pediatric and adult gastroenterologists convened through web workshops.
- Discussions focused on issues related to transitional care for IBD patients.
- Consensus statements were formulated based on expert discussions.
Main Results:
- Five consensus statements were developed regarding the transfer from pediatric to adult care.
- Nine consensus statements were established concerning the implementation of transitional care programs.
- The consensus addresses critical aspects of managing IBD patients transitioning to adult services.
Conclusions:
- A programmed approach to transition and enhanced collaboration between pediatric and adult gastroenterologists are crucial.
- The developed consensus statements aim to bridge current gaps in healthcare transition for childhood-onset IBD.
- This consensus is intended to form the basis for future clinical practice guidelines.
Abstract:
Inflammatory bowel disease (IBD) is a chronic relapsing inflammatory disorder of the intestine. The incidence of IBD is increasing worldwide, including Japan, and in approximately 25% of all affected patients it is diagnosed before 18 years of age. For the health maintenance of such patients, planned transition to adult care systems is essential. Previous Japanese surveys have revealed gaps between adult and pediatric gastroenterologists with regard to their knowledge and perception of health-care transition for patients with childhood-onset IBD. In 2021-2022, several Web workshops to discuss issues related to the transitional care of IBD patients were held by the Ministry of Health, Labour and Welfare of Japan as part of their program for research on intractable diseases. Clinicians experienced in IBD treatment for pediatric and adult patients participated. As a result, this panel of adult and pediatric gastroenterologists developed five consensus statements on the issue of "transfer from pediatric to adult care" and nine statements on the issue of "addressing transitional care (transition program)." To address current gaps in health-care transition for childhood-onset IBD patients, a programmed approach to transition, and better partnerships between pediatric and adult gastroenterologists are indicated. It is hoped that this consensus statement will provide a basis for the development of appropriate guidelines for clinical practice.
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