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Engaging with patients in research on knowledge translation/implementation science methods: a self study.

Martha L P MacLeod1, Jenny Leese2,3,4, Leana Garraway5

  • 1School of Nursing, University of Northern British Columbia, 3333 University Way, Prince George, BC, V2N 4Z9, Canada. martha.macleod@unbc.ca.

Research Involvement and Engagement
|August 8, 2022
PubMed
Summary
This summary is machine-generated.

Engaging patients in patient-oriented research (POR) methods studies requires flexibility and attention to context. Including patients as co-researchers enhances understanding of research methodologies and can shape future implementation science approaches.

Keywords:
Implementation scienceKnowledge translationMethods researchPatient and public researchPatient authorPatient-orientated researchSelf-study

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Area of Science:

  • Patient and Public Engagement in Research
  • Implementation Science Methodologies
  • Collaborative Research

Background:

  • Patient-oriented research (POR) methods are advancing, with a specific focus on knowledge translation (KT)/implementation science.
  • Guidance exists for patient involvement in general POR, but less is known about engaging patients in POR methods research teams.
  • A self-study was conducted to explore patient and public engagement in studies of POR methods.

Purpose of the Study:

  • To explore the meaning and practice of engaging patients and the public in studies focused on patient-oriented research (POR) methods.
  • To understand the experiences of members within KT/implementation science teams involved in POR methods research.

Main Methods:

  • A collaborative action research approach informed a quality improvement self-study.
  • Individual interviews were conducted with 18 members across four KT/implementation science teams.
  • Thematic analysis of qualitative data was followed by team discussions and refinement of findings by patient/public members.

Main Results:

  • Research on POR KT/implementation science methodologies involves navigating uncertainty and requires careful matching of patients/public members to teams.
  • Teams must work intentionally yet flexibly, remaining attuned to external contextual influences.
  • Patients/public members contribute unique life experiences and worldviews, becoming co-researchers; reflection enhances team awareness, sensitivity, and communication.

Conclusions:

  • An iterative self-study process fostered reflection and new understanding among research team members.
  • Involving patients/public members as co-researchers offers novel perspectives on research methodologies.
  • These insights may shape future knowledge translation and implementation science research practices.