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Palliative care services for children with life-limiting conditions
Jenny Hayden1, Mary Ann Larkin2, Hilary Noonan3,2
1Department of Paediatrics, University Hospital Limerick, Limerick, Ireland. jennyhayden40@gmail.com.
Irish Journal of Medical Science
|August 26, 2022
Summary
Pediatric palliative care (PC) for children with life-limiting conditions (LLC) is crucial for quality of life. Enhanced collaboration and resources are needed for these growing numbers of children.
Area of Science:
- Pediatric Palliative Care
- Life-Limiting Conditions
- Healthcare Services Research
Background:
- Palliative care (PC) is vital for optimizing quality of life in children with life-limiting conditions (LLC).
- Seamless care delivery necessitates strong collaboration between pediatric and PC services.
Purpose of the Study:
- To analyze patient demographics, disease profiles, and resource utilization for pediatric LLC in Ireland.
- To evaluate the role of PC services and identify areas for improvement.
Main Methods:
- Retrospective analysis of 77 children with LLC over a 7-year period in Ireland.
- Data collected included patient characteristics, care plans, place of death, and service involvement.
Main Results:
- The cohort included diverse ages, with 35% under one year old; 51% male.
- Most patients (71%) were referred for end-of-life care; 65% had advanced care plans.
- A majority (70.5%) died at home, with significant involvement from PC teams and community support.
Conclusions:
- The increasing prevalence of LLC in children necessitates enhanced pediatric and PC services.
- Further resources and development are required to meet the growing needs of this population.
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