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Measuring Medication Use, Obstacles, and Knowledge in Individuals With Cirrhosis.
Archita P Desai1, Shahd Duzdar2, Timothy Stump3
1Division of Gastroenterology and Hepatology, Indiana University School of Medicine, Indianapolis, Indiana.
A new questionnaire, "My Cirrhosis Coach" (MCC), effectively measures patient understanding of cirrhosis care, including medication use and obstacles. This tool can standardize knowledge assessment in clinical practice and research.
Area of Science:
- Hepatology
- Patient Education
- Clinical Assessment Tools
Background:
- Limited tools exist to measure patient understanding of cirrhosis care.
- Patient knowledge is a modifiable factor crucial for managing cirrhosis.
Purpose of the Study:
- To develop and validate "My Cirrhosis Coach" (MCC), a personalized, self-administered questionnaire.
- To evaluate patient understanding of cirrhosis-related medication use, obstacles, and knowledge.
Main Methods:
- Prospective enrollment of 713 adults with cirrhosis across 3 tertiary centers.
- Psychometric validation including confirmatory factor analysis and content validity index.
- Discriminant validity assessed by comparing scores between patient groups.
Main Results:
- The MCC demonstrated a good fit with a 6-factor model.
- Experts rated the MCC with high content validity (81%-94%) and accuracy (91%-100%).
- Scores varied based on cirrhosis complications, inpatient vs. outpatient status, income, education, and home support.
Conclusions:
- The validated MCC can standardize the measurement of medication use and knowledge in cirrhosis care.
- MCC is suitable for use in clinical practice and educational research studies.
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