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COVID-19 and Persons With Intellectual and Developmental Disabilities: Implications for Future Policy, Practice, and
Amy S Hewitt1, John G Smith1, Liz Weintraub2
1Amy S. Hewitt and John G. Smith, University of Minnesota, Institute on Community Integration, Research and Training Center on Community Living.
The COVID-19 pandemic disproportionately impacted people with intellectual and developmental disabilities (IDD), causing isolation and unmet needs. Reflection on these experiences is crucial for improving future research, policy, and practice for the IDD community.
Area of Science:
- Public Health
- Disability Studies
- Social Sciences
Background:
- The COVID-19 pandemic presented significant challenges for the general population.
- Individuals with intellectual and developmental disabilities (IDD) faced amplified difficulties due to the pandemic.
- Pre-existing vulnerabilities were exacerbated, leading to severe disruptions in daily life for people with IDD.
Purpose of the Study:
- To examine the profound impact of the COVID-19 pandemic on individuals with intellectual and developmental disabilities (IDD).
- To reflect on the implications of the pandemic for research, policy, and practice concerning the IDD community.
- To advocate for listening to the experiences of people with IDD and their families.
Main Methods:
- This commentary analyzes the effects of the pandemic on people with IDD.
- It draws upon existing studies and reports concerning COVID-19 and its impact on vulnerable populations.
- The analysis is framed through the lived experiences and perspectives of individuals with IDD.
Main Results:
- People with IDD experienced heightened risks of COVID-19 infection and mortality.
- Disruptions included job loss, social isolation, staffing shortages in support services, and limited healthcare access.
- Many individuals with IDD faced prolonged isolation, loneliness, and unmet support needs, with some denied treatment and others dying.
Conclusions:
- The pandemic highlighted critical failures in supporting individuals with IDD, necessitating national reflection.
- Urgent consideration of research, policy, and practice is required to address the pandemic's impact on the IDD community.
- Centering the voices and experiences of people with IDD and their families is essential for future improvements.
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