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Development of the Breast Cancer Survivors Symptom Checklist for Use in Follow-Up Multidisciplinary Appointments
Inger Schou-Bredal1, Elin Myklebust Sørensen2, Kari Heitmann Kraglund2
1Faculty of Medicine, Institute for Health and Science, University of Oslo, Oslo, Norway.
Patient Related Outcome Measures
|October 14, 2022
Summary
A new Breast Cancer Survivors Symptom Assessment Checklist (BCS-SC) helps survivors and healthcare professionals identify and manage common symptoms. This tool aims to improve patient-centered care during routine follow-ups for breast cancer survivors.
Area of Science:
- Oncology
- Patient Care
- Health Outcomes
Background:
- Breast cancer follow-up focuses on treatment efficacy, complications, and recurrence detection.
- Survivors often experience prolonged physical and psychological adverse effects needing attention.
- Current follow-up protocols may not fully address the holistic needs of breast cancer survivors.
Purpose of the Study:
- To develop a brief symptom assessment tool for breast cancer survivors.
- To provide a guideline for survivors and healthcare professionals during routine follow-ups.
- To describe survivors' individual experiences with follow-up care.
Main Methods:
- The Breast Cancer Survivors Symptom Assessment Checklist (BCS-SC) was developed using a literature review.
- A nominal group technique focus group with 6 healthcare professionals was conducted.
- Qualitative interviews with 16 breast cancer survivors provided experience and feedback.
Main Results:
- The BCS-SC includes 13 symptoms/burdens rated on a 0-10 scale.
- Eight survivors reported 2 or more symptoms, but only one discussed them with their doctor.
- Survivors found annual follow-ups important but were unprepared for them.
Conclusions:
- The BCS-SC is a comprehensive tool for assessing common symptoms and burdens in breast cancer survivors.
- It can optimize follow-up care and facilitate more patient-centered consultations.
- The checklist promotes a more patient-initiated and focused dialogue during appointments.
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