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Sickle cell disease among Latinx in California
Jhaqueline Valle1, Judith R Baker2, Daniel Madrigal1
1Tracking California, Public Health Institute, Richmond, CA, United States of America.
Latinx individuals with Sickle Cell Disease (SCD) in California are younger and utilize emergency services less than non-Latinx patients. Understanding these differences in SCD patient demographics is crucial for improving health outcomes.
Area of Science:
- Hematology
- Public Health
- Genetics
Background:
- Sickle Cell Disease (SCD) disproportionately affects African Americans and Latinx populations in the U.S.
- Research has historically overlooked the specific impact of SCD on the Latinx community nationwide.
- Latinx individuals represent the second-largest demographic affected by SCD in the United States.
Purpose of the Study:
- To compare demographics, genotypes, insurance status, and healthcare utilization between Latinx and non-Latinx individuals with SCD in California.
- To highlight the specific characteristics of Latinx patients with SCD to inform targeted health policies and programs.
Main Methods:
- Utilized data from the California SCD Data Collection Program (2016-2018) and newborn screening cases (2000-2017).
- Compared a cohort of 501 Latinx SCD patients (Lx-SCD) with non-Latinx SCD patients (NLx-SCD).
- Analyzed demographic data, genotypes, primary insurance, and healthcare utilization patterns, including Emergency Department encounters.
Main Results:
- Latinx individuals with SCD were statistically significantly younger than their non-Latinx counterparts.
- Females predominated in both groups, with 70% insured by Medicaid.
- Mean Emergency Department encounters were significantly lower among adult Latinx patients with SCD.
Conclusions:
- Latinx individuals with SCD exhibit distinct demographic, genotypic, and healthcare utilization patterns compared to non-Latinx individuals in California.
- Given the growing Latinx population in the U.S., their unique SCD characteristics require focused attention.
- Addressing these specific needs is essential for developing effective policies and programs to improve health outcomes for Latinx individuals with SCD.
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