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Overcoming tensions between family-centered care and fidelity within Early Intervention implementation research
Katherine Pickard1, Allison Wainer2, Sarabeth Broder-Fingert3
1Emory University School of Medicine, USA.
Insights
Early Intervention (EI) systems support families with young children experiencing developmental delays. Research must integrate family-centered care principles to enhance therapeutic service delivery for children, including those with autism.
Area of Science:
- Developmental Psychology
- Pediatric Health
- Family Studies
Background:
- Early Intervention (EI) systems are crucial for children aged 0-3 with developmental delays.
- EI is a primary access point for services, particularly for children at risk for autism.
- Current research often focuses on evidence-based practices but overlooks family-centered care.
Purpose of the Study:
- To highlight the importance of family-centered care in EI research.
- To explore how family-centered care influences intervention delivery.
- To propose future research directions integrating family-centered care and intervention impact.
Main Methods:
- This commentary reviews existing research on EI and autism interventions.
- It analyzes the principles of family-centered care.
- It discusses theoretical implications for research design.
Main Results:
- Family-centered care, prioritizing family values and functioning, is central to EI.
- Ignoring family-centered care in research may limit the effectiveness of interventions.
- Integrating family-centered care can improve service delivery and outcomes.
Conclusions:
- Family-centered care warrants greater attention in EI research.
- Future research should evaluate the combined impact of family-centered care and specific interventions.
- This approach can lead to more effective and respectful services for families with young children.
Lay Abstract:
Early Intervention systems provide therapeutic services to families of young children birth to 3 years with developmental delays and are considered a natural access point to services for young children and their families. Research studies in the autism field have been interested in training providers to deliver evidence-based practices in Early Intervention systems to increase access to services for young children with an increased likelihood of being autistic. However, research has often overlooked that Early Intervention systems prioritize family-centered care, an approach to working with families that honors and respects their values and choices and that provides supports to strengthen family functioning. This commentary points out that family-centered care deserves greater attention in research being done in Early Intervention systems. We describe how family-centered care may shape how interventions are delivered, and discuss directions for future research to evaluate the impact of family-centered care alongside intervention delivery.
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