Overcoming tensions between family-centered care and fidelity within Early Intervention implementation research

Katherine Pickard1, Allison Wainer2, Sarabeth Broder-Fingert3

  • 1Emory University School of Medicine, USA.

Insights

Early Intervention (EI) systems support families with young children experiencing developmental delays. Research must integrate family-centered care principles to enhance therapeutic service delivery for children, including those with autism.

Area of Science:

  • Developmental Psychology
  • Pediatric Health
  • Family Studies

Background:

  • Early Intervention (EI) systems are crucial for children aged 0-3 with developmental delays.
  • EI is a primary access point for services, particularly for children at risk for autism.
  • Current research often focuses on evidence-based practices but overlooks family-centered care.

Purpose of the Study:

  • To highlight the importance of family-centered care in EI research.
  • To explore how family-centered care influences intervention delivery.
  • To propose future research directions integrating family-centered care and intervention impact.

Main Methods:

  • This commentary reviews existing research on EI and autism interventions.
  • It analyzes the principles of family-centered care.
  • It discusses theoretical implications for research design.

Main Results:

  • Family-centered care, prioritizing family values and functioning, is central to EI.
  • Ignoring family-centered care in research may limit the effectiveness of interventions.
  • Integrating family-centered care can improve service delivery and outcomes.

Conclusions:

  • Family-centered care warrants greater attention in EI research.
  • Future research should evaluate the combined impact of family-centered care and specific interventions.
  • This approach can lead to more effective and respectful services for families with young children.
Abstract

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