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Addressing Self-Injurious Behavior in the Medically Complex Child: Identifying the Root Cause vs Blocking Resulting
Christina Low Kapalu1, Amornluck Krasaelap2, Sarah S Nyp3,4
1Division of Gastroenterology, Hepatology, and Nutrition, UMKC School of Medicine, Kansas City, MO.
A 7-year-old girl with autism and intellectual disability exhibits self-injurious behavior before bowel movements. Further evaluation is needed to determine the cause and guide treatment for this challenging behavior.
Area of Science:
- Developmental-Behavioral Pediatrics
- Neurodevelopmental Disorders
- Autism Spectrum Disorder
Background:
- A 7-year-old nonverbal girl with autism spectrum disorder (ASD), profound intellectual disability, and visual/hearing impairments presents with self-injurious behavior (SIB).
- The SIB, including head-hitting and eye-poking, occurs exclusively before bowel movements and is associated with distress.
- Previous medical evaluations have not identified an organic cause for the behavior.
Purpose of the Study:
- To evaluate and manage self-injurious behavior in a complex pediatric case.
- To investigate the link between gastrointestinal function and SIB in a child with multiple neurodevelopmental challenges.
Main Methods:
- Case report detailing a 7-year-old girl with significant medical and developmental comorbidities.
- Review of prior consultations including gastroenterology, ophthalmology, neurology, and otolaryngology.
- Multidisciplinary team evaluation focusing on the behavioral and medical aspects of SIB preceding bowel movements.
Main Results:
- The patient exhibits consistent self-injurious behavior, specifically eye-poking, in the hour before bowel movements.
- Behavioral interventions by caregivers have not effectively reduced the SIB.
- Gastrointestinal management is ongoing for constipation, but the direct link to SIB requires further investigation.
Conclusions:
- The etiology of SIB preceding bowel movements in this complex case remains unclear.
- Further assessment is warranted to explore potential contributing factors, including sensory processing, pain, or communication deficits.
- A comprehensive, multidisciplinary approach is essential for managing SIB in children with profound developmental disabilities.
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