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Equitable Research PRAXIS: A Framework for Health Informatics Methods
Tiffany C Veinot1,2, Phillipa J Clarke3,4, Daniel M Romero1,5,6
1School of Information, University of Michigan Ann Arbor, MI, USA.
This study introduces the PRAXIS framework to guide health informatics research with marginalized populations, ensuring equitable participation and methods. It addresses health equity by investigating systematic differences and contextual factors in research.
Area of Science:
- Health Informatics
- Health Equity Research
- Social Determinants of Health
Background:
- Growing focus on health equity in health informatics.
- Lack of a comprehensive framework for research with marginalized groups.
Purpose of the Study:
- To develop a framework for health informatics research with marginalized populations.
- To outline critical considerations for addressing health equity in research.
Main Methods:
- Literature review of equity-focused health informatics studies.
- Analysis of experiences from nine studies in the US and Canada.
- Inclusion of disparities related to age, disability, gender, location, race, sexual orientation, and socioeconomic status.
Main Results:
- Identified four key equity-related methodological considerations.
- Developed the PRAXIS framework: Participation and Representation, Appropriate methods and interventions, conteXtualization and structural competence, Investigation of Systematic differences.
- Provided guidance for operationalizing these considerations across four research stages.
Conclusions:
- The PRAXIS framework aids informaticists in systematically addressing health equity.
- Framework assists in project initiation, sampling, data collection, and analysis.
- Encourages the use of these insights to advance health equity in informatics.
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