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Parental Views of Facilitators and Barriers to Research Participation: Systematic Review

Julia M Nathe1, Tira T Oskoui2, Elliott Mark Weiss3,4

  • 1University of Washington School of Medicine, Seattle, Washington.

Pediatrics
|December 8, 2022
PubMed

Insights

Low pediatric research enrollment stems from risks to children and decision stress, but potential benefits and altruism encourage participation. Understanding these factors can improve recruitment for pediatric studies.

Area of Science:

  • Pediatric Health Research
  • Clinical Trial Recruitment
  • Health Disparities

Background:

  • Low enrollment in pediatric research is costly, limits generalizability, and worsens health disparities.
  • Identifying barriers and facilitators to participation is crucial for improving pediatric study enrollment.
  • Understanding parental decision-making is key to addressing low enrollment rates.

Approach:

  • Systematic review of 70 peer-reviewed articles from major databases (PubMed, Embase, etc.).
  • Extracted data on facilitators, barriers, enrollment status, and study characteristics.
  • Focused on parental decision-making and views of parents who declined participation.

Key Points:

  • Key facilitators include perceived child benefits, altruism, and belief in research importance.
  • Major barriers involve risks to the child, burdens of participation, and decision-related stress.
  • Limited ability to analyze differences by enrollment status or interactions between factors.

Conclusions:

  • This review highlights critical facilitators and barriers influencing pediatric research participation.
  • Findings can inform interventions to enhance parental recruitment experiences and optimize enrollment.
  • Addressing identified barriers is essential for improving pediatric study recruitment and generalizability.
Abstract

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