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Children with medical complexity and pediatric palliative care: Data by a respiratory intermediate care unit

Serena Caggiano1, Martino Pavone1, Claudio Cherchi1

  • 1Academic Department of Pediatrics, Pediatric Pulmonology & Respiratory Intermediate Care Unit, Sleep and Long-Term Ventilation Unit, Bambino Gesù Children's Hospital IRCCS, Rome, Italy.

Pediatric Pulmonology
|December 13, 2022
PubMed

Insights

Pediatric palliative care (PPC) serves children with medical complexity (CMC). This study highlights the increasing needs of CMC, emphasizing respiratory issues and the importance of coordinated care for these growing populations.

Area of Science:

  • Pediatrics
  • Palliative Care
  • Medical Complexity

Background:

  • Pediatric palliative care (PPC) addresses children with life-limiting conditions and their families.
  • Children with medical complexity (CMC) often require ongoing, specialized care and may reach adulthood.

Purpose of the Study:

  • To characterize the population of CMC admitted to a tertiary referral hospital's Respiratory Intermediate Care Unit.
  • To identify pathologies, medical devices, care needs, and hospitalization patterns in this CMC cohort.

Main Methods:

  • Retrospective analysis of 130 CMC patients admitted over six months.
  • Data collected included pathologies, comorbidities, medical devices, hospitalization duration, and home care plans.

Main Results:

  • The primary pathologies included neuromuscular, neurological, respiratory, metabolic, and malformative diseases.
  • A high percentage of CMC patients had multiple comorbidities and required medical devices.
  • Average hospitalization was 7 days with 2 admissions/year; 47/130 patients did not require home care activation.

Conclusions:

  • The population of children eligible for PPC is growing, leading to increased comorbidities and complex needs.
  • Respiratory symptoms are highly prevalent, underscoring the need for PPC expertise in respiratory care.
  • Improved data sharing and knowledge about CMC needs can enhance care coordination.

Keywords:
children with medical complexitychronic diseasescomorbiditymechanical ventilationpaediatricpalliative carepulmonologyspecial needs

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