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Updated: Aug 17, 2025

Translational Brain Mapping at the University of Rochester Medical Center: Preserving the Mind Through Personalized Brain Mapping
Published on: August 12, 2019
Right Brain: The Purple Scarf and the Cortical Ribbon
Katherine Fu1, Lealani Mae Acosta2
1From the Department of Neurology (K.F.), University of California, Los Angeles; and Department of Neurology (L.M.A.), Vanderbilt University Medical Center, Nashville, TN. kfu@mednet.ucla.edu.
Abstract:
A patient with probable Creutzfeldt Jakob disease (CJD) who was previously a high-functioning financial analyst remains fiercely independent despite her family's concerns about her safety. As a trainee with limited experience in leading these difficult conversations, this neurology resident describes her experience reconciling the viewpoints of herself, the patient, and her family. She reflects on the ability to reframe this delicate conversation from one of loss of independence in a patient with a rapidly progressive, neurodegenerative condition to one of safety, security, and the care of her family.
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