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Values and value in patient and public involvement: moving beyond methods
Lynn Laidlaw1, Rosemary J Hollick1
1University of Aberdeen, Aberdeen, UK.
Future Healthcare Journal
|December 23, 2022
Summary
Patient and public involvement (PPI) in research should shift from a procedural focus to one of shared values. This approach, emphasizing reflexivity and relationships, can integrate PPI as a core research value, not just an optional method.
Area of Science:
- Health Services Research
- Qualitative Research
Background:
- Patient and Public Involvement (PPI) in research is often tokenistic or an optional extra.
- Current discussions focus on PPI processes and methods, not its inherent value.
Purpose of the Study:
- To advocate for a paradigm shift in PPI, moving from methods to a culture of common values.
- To explore how personal experiences shape the value and practice of PPI in research.
Main Methods:
- Reflexive and personalized approach.
- Analysis of team experiences as patients, healthcare professionals, and academics.
- Illustrating productive tensions and their resolution through analytic conversations.
Main Results:
- Team experiences highlight the evolution of values in PPI.
- Analytic conversations help resolve tensions in collaborative research.
- An ethic of responsibility is crucial for effective PPI.
Conclusions:
- Embracing reflexivity and strong relationships are key to making PPI integral to research.
- PPI should be viewed as a core value, not merely a methodological component.
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