Developing a consensus statement for psychosocial support in active surveillance for prostate cancer

Area of Science:

• Oncology
• Urology
• Psychosocial Health

Background:

• Active surveillance is a management option for men with prostate cancer.
• Psychosocial support needs for men on active surveillance require clear prioritization.
• Families of men on active surveillance also require tailored support.

Purpose of the Study:

• To prioritize the psychosocial support needs of men undergoing active surveillance for prostate cancer.
• To develop a consensus statement guiding best practice psychosocial support for active surveillance.
• To involve patients and the public in defining support needs.

Main Methods:

• A two-round Delphi process involving patient/carer and healthcare provider panels.
• Qualitative data and literature review informed the Delphi process.
• An expert discussion group developed consensus statements based on Delphi findings.

Main Results:

• Patients and healthcare professionals had slight differences in perceived support priorities.
• Key agreed priorities include patient involvement in decision-making, continuity of care, and improved understanding of cancer progression risks.
• Twenty-two consensus statements were agreed upon, covering program principles, consultation structure, information content, and delivery methods.

Conclusions:

• The consensus statement offers a framework for patient-focused psychosocial support.
• Adoption of this framework can enhance uptake and adherence to active surveillance.
• Improved psychosocial support is vital for men with prostate cancer on active surveillance.